FinnGen plans to collect health data on Finland’s entire population

Linn Ophaug
health genetics finland science research

Finland’s largest genetic research project, FinnGen, plans to expand its database to include health information on the entire Finnish population, reports Yle.

The expansion could involve data on around 7.1 million people, including diagnoses, hospital visits and laboratory results. FinnGen already holds genetic and health-related data on more than 500,000 Finns.

The plans have raised concerns about privacy and data security. Tomi Voutilainen, a professor of public law, warns that it is unclear to citizens how their data will be processed.

Yle also reports two security breaches involving FinnGen, in 2020 and 2023.

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